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Hello, I am Fernando Masiá and I have Usher syndrome, a degenerative disease that causes deafblindness There is currently no cure and little information and resources are available in Spain. My role as an ambassador for the Usher Syndrome Coalition is to raise awareness of the disease and expand the knowledge and resources available to address the disease.
My cure for blindness is enthusiasm and the courage to face new challenges everyday. My determination to savor my remaining vision has led me to set a goal: to conquer the "Six Majors" the most iconic marathons in the world, including Berlin, Chicago, Boston, New York, London, and Tokyo.
Even though Usher Syndrome may feel like a countdown until my vision vanishes forever, it doesn't deter me from living an extraordinary life, filled with purpose and excitement. The Six Majors experience exemplifies how behind every challenge or disease lies an opportunity: the chance to discover within oneself a new person with incredible strength and courage. Thanks to the disease, I live life to the fullest, and I've discovered the fighter inside me My goal through this project is to spread awareness and establish an association in Spain to support all children and others affected by Usher Syndrome.
100% of the proceeds will go towards funding the Usher Syndrome Association Spain. Our association aims to raise awareness about Usher Syndrome, provide information and resources to those affected, offer emotional support, and focus on creating and strengthening an active community of those impacted.
Hello, I am Fernando Masiá and I have Usher Syndrome, a degenerative disease that causes deafblindness. There is currently no cure and little information and resources are available in Spain. My role as an ambassador for the Usher Syndrome Coalition is to raise awareness of the disease and expand the knowledge and resources available to the community of Usher Syndrome.
My cure for blindness is enthusiasm and the courage to face new challenges everyday. My drive to savour my remaining vision has led me to set a goal: to conquer the "Six Majors", the most iconic marathons in the world, in Berlin, Chicago, Boston, New York, London and Tokyo.
Although Usher Syndrome may feel like a countdown until my vision vanishes forever, it doesn't stop me from living an extraordinary life, full of purpose and excitement. The Six Majors experience exemplifies how behind every challenge or disease there is often an opportunity; the chance to discover within yourself a new person, with incredible strength and courage. Thanks to the disease I live life to the fullest and I have discovered the warrior inside me. Through this project, my goal is to spread this message and establish an association in Spain to support all children and others affected by Usher Syndrome.
100% of the proceeds will go towards funding the Usher Syndrome Association Spain. Our association aims to raise awareness about Usher Syndrome, provide information and resources to those affected, offer emotional support, and focus on creating and strengthening an active community.
Welcome to my first adventure that will take place in Berlin on September 29, 2024.
I’m raffling Nike Vaporfly 3 among the first 100 donors!!!!
Welcome to my first adventure that will take place in Berlin on September 29, 2024.
Here begins the adventure where I will conquer the most impressive marathons in the world.
I am raffling off a pair of Nike Vaporfly 3 shoes among the first 100 donors!
The New York City Marathon is one of the most iconic marathons in the world, with more than 50,000 runners participating each year.
The tour crosses the five boroughs of the city, starting on Staten Island and passing over the iconic Verrazzano Bridge.
I will enjoy Manhattan and Brooklyn, with cheering crowds all along the way, including Manhattan’s famous skyscrapers and Central Park, where the race ends.
They always say you have to do it once in your life because it’s spectacular.
The Tokyo Marathon combines Tokyo’s modernity with its rich cultural tradition.
With more than 30,000 runners, the route passes iconic sites such as Senso-ji Temple in Asakusa, the Imperial Palace and Tokyo Tower.
Tokyo is an impressive and culturally very different city, which makes it fascinating.
The Boston Marathon is the oldest marathon in the world, held annually since 1897, with about 30,000 runners. Its challenging route includes the famous Heartbreak Hill, a steep slope that puts participants to the test.
Boston, with its rich history and fervent support for runners, offers an unparalleled atmosphere.
To run here is to be part of a century-old tradition, with the exciting finish on Boylston Street near the historic Boston Public Library.
The London Marathon offers a scenic route that passes some of the city’s most iconic landmarks, including Big Ben, the London Eye and Buckingham Palace.
With more than 40,000 runners, this race is known for its festive atmosphere and the unconditional support of the spectators.
London is a fascinating mix of ancient and modern, and participating in this marathon is a wonderful way to explore the city and enjoy its historic sites.
The Chicago Marathon is known for its flat and fast route, which runs through the different neighborhoods of the city, including the Loop, Lincoln Park and Chinatown, with some 45,000 runners.
Chicago is famous for its impressive architecture, with iconic views of the Willis Tower and the John Hancock skyscraper.
The race offers an unparalleled community atmosphere and an opportunity to enjoy the hospitality and diversity of this Midwestern city.
The New York City Marathon is one of the most iconic marathons in the world, with more than 50,000 runners participating each year.
The tour crosses the five boroughs of the city, starting on Staten Island and passing over the iconic Verrazzano Bridge.
I will enjoy Manhattan and Brooklyn, with cheering crowds all along the way, including Manhattan’s famous skyscrapers and Central Park, where the race ends.
They always say you have to do it once in your life because it’s spectacular9
Finally, the Tokyo Marathon combines Tokyo’s modernity with its rich cultural tradition.
With more than 30,000 runners, the route passes iconic sites such as Senso-ji Temple in Asakusa, the Imperial Palace and Tokyo Tower.
Tokyo is an impressive and culturally very different city, which makes it fascinating.
The Boston Marathon is the oldest marathon in the world, held annually since 1897, with about 30,000 runners.
Its challenging route includes the famous Heartbreak Hill, a steep climb that is a true test, with its rich history and fervent support for runners, the atmosphere is unparalleled.
To run here is to be part of a century-old tradition, with the exciting finish on Boylston Street near the historic Boston Public Library.
The London Marathon offers a scenic route that passes some of the city’s most iconic landmarks, including Big Ben, the London Eye and Buckingham Palace.
With more than 40,000 runners, this race is known for its festive atmosphere and the unconditional support of the spectators.
London is a fascinating mix of ancient and modern, and participating in this marathon is a wonderful way to explore the city and enjoy its historic sites.
The Chicago Marathon is known for its flat and fast route, which runs through the different neighborhoods of the city, including the Loop, Lincoln Park and Chinatown, with some 45,000 runners.
Chicago is famous for its impressive architecture, with iconic views of the Willis Tower and the John Hancock skyscraper.
The race offers an unparalleled community atmosphere and an opportunity to enjoy the hospitality and diversity of this Midwestern city.